Science evolving is a good thing, but it’s not always the answer you hope for.
Read More"Finding My Community," by Elizabeth Ann
Elizabeth Ann has trouble adjusting to a career at a non-profit, until something clicks about what it means to advocate for rare disease.
Read More"Can We Fix It?" by Kasha Morris
This is a story about fixing an impossible problem in an unexpected way.
Read More"That 'Spinning Room' Moment," by Jill Kiernan
This is a story about one family's rare disease journey and the birth of a community.
Read More"Navigating a World Not Built for Us," by Avery Roberts
Avery Roberts is breaking down barriers tackling misconceptions surrounding disability and giving a loud voice to the, often-forgotten, rare disease community.
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