Science evolving is a good thing, but it’s not always the answer you hope for.
Read More"Thankful," by Riley Blevins
Riley Blevins went to work for Cure HHT in hopes of helping his son. But turns out, he wouldn't be the one doing the saving.
Read More"Giving Up," by Heidi Wallis
This is the story of a type-A rare disease mom who tries for years, but can't undo her daughter's brain damage, so she sets out to stop other children from facing the same fate, and learns in the interim that "giving up" is just what you need to do sometimes.
Read More"The Day My World Changed," by Maddison Hall
After dreams of a perfect parenthood, Maddison was thrown into the rare disease world and became an unexpected advocate for her daughter and others in the Glut1 Deficiency Community.
Read More"Super Bowl Sunday: Diagnosis Day," by Erin Coller
After a year of seeking answers and a diagnosis for her toddler son’s delays and seizure, Erin Coller shares how, one Super Bowl Sunday, a phone call from the neurologist changed their lives forever.
Read More"Wrestling with an Estranged Father's Legacy," by Jeff Levenson
In an unexpected twist of where he thought his life would take him, Jeff finds one of his greatest purposes in life raising awareness of and helping find therapies for rare diseases.
Read More"Heart vs. Brain," by Cassi Friday
A scientist used to compartmentalize as a way of emotional preservation but learned to harness the anxiety that comes with being a rare disease caregiver to help patients with her children's rare disease.
Read More"The Journey Is Just Beginning," by Carmen Camacho
Carmen Camacho's story spans decades, but her journey is just beginning.
Read More"How My Bad Dating History Led to Me Being a Rare Disease Advocate," by Becky Nieves
Do you know what happens when a Type A fixer turns into a rare disease mom warrior? Then have a listen!
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