Not Alone: Stories from CZI's Rare As One Project

After her child is finally diagnosed with Hermansky Pudlock Syndome, Donna Appell set off on a mission to make sure other parents have the information she didn’t, and feeling unmoored after she’s diagnosed with LFS, Jenn Perry attends a patient conference that changes her life.

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Hazards: Stories about encountering danger in the field

In his early twenties, Jonathan Feakins goes above and beyond for his job as a West Nile virus mosquito technician, and while working as a coral reef biologist in Panama in 1989, Nancy Knowlton and her young daughter are taken into the custody of the Panamanian military when the U.S. invades.

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